Living with someone who lives with Fibromyalgia

As I said in my previous post, Lindsey, Archie and I went into London yesterday. To most people this is an easy affair, you hop on the train, get out at the other end, walk around all day, eat, drink and come home.

If you suffer from fibromyalgia (FMS), or are a carer for someone with the condition, it is slightly less easy. For everything that Lindsey does there are preparations to make and consequences to assess.

Preparations include phoning ahead to wherever we are going to explain about Archie and what a service dog is, making sure people know where we are going, packing snacks, water and drugs for all eventualities. Consequences are much of an unknown, but following a day out like yesterday, Lindsey will probably spend a good proportion of the next week in bed. The more immediate consequences are trying to get passed over-zealous security guards with a hyper-active springer spanial, trying not to cause too much trouble for anyone else you are with, making sure Lindsey is not over doing it, whilst at the same time trying to enjoy yourself.

It’s quite hard, but definitely worth it, because yesterday was fantastic, we stayed a bit too long though as when we finally got back Lindsey had a migraine, which will add another few days to her recovery time.


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